Monday, April 21, 2008

Kacey Rose

This little 3 year old girl and her family REALLY need your prayers right now. Kacey is probably in her final stages of leukemia. Hospice has been called and they are trying to keep her out of pain. Here is a post from her daddy. WARNING....it is gut wrenching to read. I can't imagine what this family is going thru. Hug your babies tighter today. Kiss a little more today. And say a prayer for this mom and dad who must be experiencing the worst pain ever.

let me fill you in....We left Yale yesterday afternoon. We are attempting to keep Kacey comfortable at home. We were met by the VNA and Hospice and have some sort of plan which we will modify as needed.Kacey gave up eating and drinking 5 days ago and is currently receiving IV nutrition (TPN) for 12 hours a day. She continues with 103 degree fevers every 4 hours or so and has a bad cough. The cough caused her to vomit many times last night all over herself and bedding. Needless to say, last night was rough and I have been up for 26 of the last 27 hours, so far. BUT we would not even complain if it meant that our little monkey was going to be alright.I will be taking some time off with the intentions of taking Kacey on a few day trips to the aquarium, butterfly garden, zoo, etc. I hope she is stable enough to enjoy these trips.Saturday morning was absolutely beautiful outside, sunny and in the 70's - the first real spring day. As everyone was enjoying the weather my wife was doing something no parent should ever have to do - she went to pick out cemetery plots. We purchased 4 so we will all be together. She picked out a wonderful spot where you can see our house and backyard from and in turn, we will be able to see from our backyard and bedroom window. In some way, we believe it will comfort us to know that she is close and watching over us.Needless to say, we should have gone together but one of us had to stay with Kacey at the hospital.Again and please - be VERY grateful for what you have and do not complain about what you don't. Know that you are blessed and that you did not spend this past Saturday selecting a cemetery plot for you child.Kris and Kacey are still sleeping, hopefully she will feel up to a small road trip today - we will let you know how it goes.

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